The Light at the End of the Tunnel

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The notion that one person is defined  by their medical diagnosis is simply offensive. You are not a disease, nor an illness. You are a person, that happens to be diagnosed with a “disease” of some sort, but that does not make you the disease. You are a person, with a personality, with strengths and weaknesses. YOU have a character, your circumstances might have influenced your character, but Oh Dear Lord never mistake that with who YOU are.

Growing up with Crohn’s disease, many people have defined me as the little sick girl, and that has offended me every single time. I never saw myself as “sick”. I am talkative and energetic, cocky at times, fun, persistent and can be annoying, some may consider me stubborn. I love life, and love to live, I share a love and hate relationship with food, and love watching shows.

I am Not the girl who has Crohn’s, and I am certainly Not the bag/pouch I have and wear. I have a name and personality, and that is who I am.

Every one of us has undoubtedly been through ups and downs in our lives, the ups gives us hope that everything is and will be alright, and the downs are always what teaches us lessons in life. We should embrace and accept every phase, and learn how to love and forgive ourselves, and accept every challenge we go through, knowing that there is light at the end of every tunnel. We should always remind ourselves that the grass is never greener on the other side, it is simply our perception of it that makes it greener, because every person has something they are dealing with that you may never know about.

I won’t deny that my illness has shaped a part of who I am today, and I’ve always considered it a blessing in disguise. I learnt how to become patient, and it certainly taught me how to never take anything for granted, I’ve learnt to have empathy instead of pity, and it undoubtedly has given me strength.

So please repeat this with me: I am Me, and Not my Disease!

 

The Road “More” Traveled

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The advantage of being young was I did not realize what I was going through, I had to make a quick decision on how to live; either dwell on the idea of being sick, or believe I was ok and have fun, for obvious reasons, I chose the latter.

My first 5 years with Crohn’s, due to my excessive need to use the restroom, “accidents” always happened, and wardrobe mishaps were a weekly (minimum) ordeal. Of course as a teenager, I could never disclose my sense of shame in front of my friends and peers, so I’d brush it off and always act like nothing happened. Cool part of all of this was, due to my skill in restroom hunting, I was crowned “the restroom spotter”.

Hospitals quickly became a familiar hang out place for my friends and I; I’d get a reaction from one of my meds (happened often), and would need to be admitted. In order to avoid FOMO, I’d invite my friends over to chill and hang out, we were creative with gossip spots too, we would meet at stairways and hidden corridors so no one could eavesdrop. My parents treated Crohn’s as a normal flu when around me, in order for me to live as much of a normal life as possible. Luckily I learnt to become the girl who happens to have Crohn’s, and never the Crohn’s patient.

Immuneless Tiptoing

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I’m just a girl who happens to be diagnosed with a few “immuneless issues”. This is my journey of living with Crohn’s Disease and Hashimoto.

At the age of 13, I was diagnosed (or to be more accurate mis-diagnosed) with ulcerative colitis. At first, this sounded scary, and at the time (back in 2000), not many people were familiar with autoimmune diseases. Running to the bathroom, dietary restrictions, and fashion mis-haps were all things I had to adjust to. With time, and the help of my parents, I learnt to live with what I have, and not make it define who I am.

In this blog, I want to share my stories and experiences with you. Every person has a story to tell, and this is mine. I am a girl who happens to have these diseases, and learnt to adjust to living with them.

Thanks for joining me, and I hope you enjoy my chronicles!